Meet The Team

Sakhara Johnson is a passionate advocate, content creator, and tech-savvy leader within the sleep health and narcolepsy community. Diagnosed with Narcolepsy with Cataplexy ten years ago, she has since become a pillar of strength, support, and storytelling in both her local and national networks. A proud volunteer and advocate, Sakhara has served at numerous national sleep conferences, exhibitions, and summits, where she shares her story, supports awareness efforts, and uplifts others navigating similar diagnoses. Her dedication to community outreach and peer support has made her a trusted and compassionate presence in both the narcolepsy and broader chronic illness communities. In 2024, Sakhara joined the Narcolepsy Navigators Podcast Team, where she first shared her personal diagnosis story. That moment sparked a new chapter—blending her lived experience with her creative and technical talents. Today, she contributes as an audio mixer, co-host, and content creator, helping craft meaningful, informative episodes that bring visibility to underrepresented voices in sleep health. Whether she’s behind the mic, editing a show, or volunteering her time to support others, Sakhara puts 100% into everything she does—from community to family. Her work reflects a heart for advocacy, a mind for technology, and a mission to ensure that no one walking through life ever feels alone.

Christine is a passionate narcolepsy advocate dedicated to raising awareness, supporting early diagnosis, and helping others feel less alone in their journey. After navigating her own path to understanding life with narcolepsy, she began sharing her experiences through her blog and creative projects, aiming to bridge the gap between medical facts and real-life experiences. With a warm, open style, Christine uses her platforms — including her vlog series and written resources — to demystify narcolepsy, highlight its impact on daily life, and inspire others to seek answers when something feels “off.” She believes that sharing honest stories can spark understanding, reduce stigma, and lead to faster, more accurate diagnoses. When she’s not advocating, Christine enjoys creating calming stationery, exploring nature, and finding beauty in the small, quiet moments of life.

​Hi everyone, my name is Mathilda and I have NT1. I’ve had it since I was 3 and for clarification I’m now 19. I enjoy colouring, painting, crafts, reading, watching tv, playing video games, and learning new things. I also have two kitties which I absolutely adore. As for what it means to be a part of this team I’d say it’s pretty amazing. I enjoy having the opportunity to help others as well as spread awareness for sleep disorders. I hope that you have a great rest of your day!! It was lovely to write to you!!

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 Liz is a sociable, creative and empathetic person who loves meeting new people and diving into their stories. She was diagnosed with narcolepsy one week before she started university in 2013, aged 18. Liz now works as speech and language therapist, working with children and young people. Her passion for advocating for others with needs or differences, and the skills she’s developed as a therapist, mean that she has many strengths as a narcolepsy advocate. She also has a lot of experience advocating for herself in the workplace.
After meeting Kerly at a narcolepsy conference and being one of the first guests on the podcast, she quickly realised she’d love to be a co-host and get more involved in the narcolepsy community.
A year and a half later, Liz has interviewed many guests on the podcast and has really benefited from meeting a variety of people with narcolepsy- feeling supported and less alone. Liz is excited to see where the future takes her and to continue on her advocacy journey.

Chloe Chea is a student and advocate born and raised in Texas with a Chinese Cambodian background. Diagnosed with Narcolepsy Type 1 in 2021 at the age of 12, she is passionate about raising awareness for sleep disorders and empowering others navigating similar challenges. Her firsthand experience managing narcolepsy in academic and social settings fuels her commitment to advocacy, peer support, and bridging the gap between lived experience and understanding among younger populations. Chloe is actively involved in her school community and seizes opportunities to speak about narcolepsy and raise awareness whenever possible. In searching for outlets to deepen her impact while in high school, she discovered NapsForLife and Narcolepsy Navigators, whose work inspired her to become more involved in the sleep disorder community and eventually join the team to help carry its mission forward. Though still early in her journey, Chloe is determined to make a lasting difference. She works at her family’s donut shop in her spare time, and plans to pursue a career in healthcare in hopes of helping to build a future where chronic illnesses like narcolepsy are better understood, accommodated, and treated with compassion, while fostering an empathetic and safe environment for all.

Heather Korbey is a creative person who has dedicated time to help others. Active as a community leader who has been self employed running a community cafe in the UK Also an advocate for people with sleep disorders, primarily narcolepsy, but sleep paralysis and Insomnia as well. Heather grew up on a farm and has had narcolepsy from age 8. As expected it affected every area of her life through school, work and more until she was diagnosed at the age of 33 and given medication which changed everything. Having the experience of both being medicated and not in her adult life Heather is happy to liaise with different sectors to raise awareness of Narcolepsy. Awareness means faster diagnosis for others, an important aspect as it has given Heather a new lease of life. Heather does regular interviews on local radio both local and online, has written articles for local magazines, and been invited to talk at WI events and at the Royal Society of Medicine, London while volunteering with charity Narcolepsy UK. Heather currently works with Action for Happiness and is an ongoing facilitator for the Happiness Habits course.

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